The Roller Coaster Chronicles: Countdown to chemo
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I'm sure my maiden name—Kurka—predisposed me to cowardice. In Polish, "kurka" means little chicken and the only more appropriate name would be whatever word means big chicken, which is what I have always been when it comes to needles, the sight of blood or pain, especially my own.
The bone marrow biopsy, therefore, terrified me. A needle, 3/16th of an inch in diameter (geez, almost a whole quarter of an inch!), would jackhammer through my hip bone so that marrow could be sucked out. How was that not to be excruciating? And what self-respecting chicken would voluntarily lie on her stomach, mooning everyone in the room, while it happened? Mercifully, the nice folks offered me knock-out drugs and I gladly accepted.
Aside from the bone marrow biopsy, which really wasn't bad, I worked maniacally in the two weeks before chemo began, afraid of how long it might be before I could work again. And after studying the potential side effects, I tried to psych myself up for horrors that I was sure lay ahead. Chemo, I learned, could imperil my veins, my heart, my liver, my lungs, and just about every other organ in my body. Collateral damage could include mouth sores, hair loss, fatigue, insomnia, weight gain, weight loss, gastric ulcers, diabetes, cataracts, glaucoma, high blood pressure, blood clots, constipation, diarrhea, seizures, rapid mood changes from euphoria to depression and, occasionally, psychosis.
See the problem? Even chemo couldn't decide whether to give me insomnia or fatigue, weight gain or weight loss, euphoria or depression. And in exchange for one affliction, I could wind up with several. Who wouldn't be psychotic?
It never occurred to me that chemo might not work, but that possibility did occur to Alex, though he never told me at the time. Like me, he was wrestling with fears of his own, yet when I asked how he was doing, he always answered he was fine. The sadness in his eyes said otherwise, and I felt so responsible for his private agony. I yearned for ways to comfort him, to convince him that everything was going to be OK, but nothing I said or did seemed to comfort him at all. Not even my feeble attempts at humor provided temporary relief. His eyes spoke what neither of us could say, which was that everything we'd ever counted on was slipping away. My health. And our future.
But I wasn't going down without fighting for our future. I'd been telling myself I would tolerate any unpleasant side effects if it meant getting rid of the cancer, but that's much easier to say than to believe, especially when unpleasant side effects are just hours away and you're reminded of them by an ever-practical sister who calls the night before and reminds you to take a plastic bag in the car in case you need it on the way home. Whoa, I hadn't thought of that. Suddenly, all I could see was tossing my cookies in the car on the way home. In front of Alex. In front of passengers in surrounding cars—a client, maybe. How utterly humiliating.
That night, I went to bed trying to think positive thoughts, but fear and sadness superseded every one. I ached for Alex. He hadn't asked for this. And didn't deserve it. A year later, he would tell me that he was fully aware that chemo didn't come with a guarantee. That he hoped that side effects and complications would be minimal but worried that he would not know how to motivate me to keep fighting if they took a great toll. Those what-ifs he'd vowed not to indulge were beginning to penetrate his resolve.
Coming Tuesday: Dope on a rope.
Betsy de Parry is the author of The Roller Coaster Chronicles and host of a series of webcasts about cancer. Find her on Facebook or Twitter or e-mail her.
Comments
Bryan
Mon, Oct 25, 2010 : 11:27 a.m.
Betsy Im right here with you...with also having low-grade, follicular lymphoma, non-Hodgkin. A CT scan for me showed the neck, chest, and abdomen so I understand and wish you the best because Im right behind you!! Im currently in the "wait and watch" which I've come to except and understand. Your right about things not working out with the chemo but the UofM is the best place to be, also being 15mins from my soon to be treatments continue keeping a positive attitude with yourself, family and friends because whatever life we have is precious to the last moment so lets make the best of it and live it to the fullest!! Dont ever feel ashamed or embarrassed because we all get sick its human. We all live and die... so dont let anyone make u feel less because of this. Support is always here and youre not alone one bit! Thank you for sharing your story
Sharon
Fri, Oct 22, 2010 : 10:15 a.m.
Betsy, When I had to get my bone marrow biopsy, I asked them if I could be out so I wouldn't feel anything, so they did thank God for that. I saw the ravishes of cancer when my dad had colon cancer and had his toxic mix of poison...it was horrible to watch him like that every day having one problem or the other. What was sad was, his doctor and nurses didn't even tell him it was going to be that bad. As soon as he stepped into the front door of our house, he was in the bathroom with diarhhea...and as a family member, it was extremely painful to see him going through this and there was nothing I personally could do for him. He passed in Dec.06, 3 months later I got my own cancer diagnosis. I was so angry because my family hadn't even greived enough for my dad dying and now I had to come back and tell them I have it too, a different kind but still could be the deadly kind. Thank God I am in remission now for 3 years. My daughter is getting married next month and we want to have the best time of our lives dancing to a live band. I will continually keep you in my prayers, just remember others are thinking of you, and poor Alex, all he can do is be there for you, hug you and be your shoulder to lean on. A caregiver's job is never done, hope you have a good weekend nevertheless...take care!
Tim
Fri, Oct 15, 2010 : 9:29 a.m.
Betsy, your descriptive writing of all the "horrors" of chemo and the after effects have certainly hit home with me. I continue my journey battling the ever lasting side effects on a daily basis, but am grateful for my life, and for people like you who share their experience with others. Thank you Betsy for what you do. Tim, xxx